{"podcast":{"title":"Beyond the Bleeds","slug":"beyond-the-bleeds-7074228","podcast_index_feed_id":7074228,"rss_url":"https://hemophiliaoutreach.org/feed/podcast/","website_url":"https://hemophiliaoutreach.org/","image_url":"https://hemophiliaoutreach.org/wp-content/uploads/2025/04/Album-Art.jpg","author":"Hemophilia Outreach Center","episode_count":50,"summary":"Beyond the Bleeds is your go-to podcast for navigating life with bleeding disorders like hemophilia, von Willebrand disease, and more. Each episode brings expert insights, inspiring personal stories, and practical advice for managing these conditions. Whether you’re living with a bleeding disorder or supporting someone who is, this podcast offers support, education, and a sense of community. Join us as we explore the challenges, triumphs, and innovations in care. For more resources, visit hemophiliaoutreach.org.","last_synced_at":"2026-07-20T10:20:06.864084+00:00","page_url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228"},"episode":{"title":"Improving Care through Trauma-Informed Practices in Hemophilia Clinics with Amy Wilson","slug":"improving-care-through-trauma-informed-practices-in-hemophilia-clinics-with-amy-wilson","published_at":"2025-09-29T05:00:00+00:00","page_url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228/improving-care-through-trauma-informed-practices-in-hemophilia-clinics-with-amy-wilson","show_page_url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228","url":"https://hemophiliaoutreach.org/improving-care-through-trauma-informed-practices-in-hemophilia-clinics-with-amy-wilson/","audio_url":"https://media.blubrry.com/3770961/content.blubrry.com/3770961/029_Improving_Care_through_Trauma-Informed_Practices_in_Hemophilia_Clinics_with_Amy_Wilson_Final.mp3","summary":"Today on Beyond the Bleeds, Heather and I welcome Amy Wilson, clinical social worker at the Center for Bleeding and Clotting Disorders at M Health Fairview in Minneapolis, Minnesota. We discuss the prevalence and impact of PTSD in the bleeding disorder community, the unique forms of trauma patients experience, and actionable strategies for providing trauma-informed care. Amy shares insights from her groundbreaking multicenter study, explains how trauma manifests for those with chronic conditions, and emphasizes the essential role of comprehensive support systems. Amy Wilson brings over 20 years of experience as a medical social worker, specializing in critical care, hospice, rare diseases, and, for the past decade, bleeding disorders. She is a published researcher, co-leading a 2023 study on post-traumatic stress disorder and post-traumatic stress symptoms among adults with hemophilia A and B, conducted alongside teams from Mount Sinai Hospital and the Boston Hemophilia Treatment Center. Amy is passionate about integrating mental health advocacy with clinical care, ensuring patients’ emotional and psychological needs are recognized and met. “Trauma isn’t just about what happened, it’s about how you as an individual, your body and mind, react to what happened.” ~Amy Wilson This week on Beyond the Bleeds PTSD and trauma are prevalent in the bleeding disorder community, with 11-14% screening positive, and more than half reported experiencing trauma connected to their condition. Trauma can stem from non-infectious medical events (frequent bleeds, joint damage), chronic pain, psychosocial experiences (bullying and isolation), and infectious complications from prior treatments (HIV, hepatitis). Hospital stays, medical procedures, and negative encounters wit…","meta_description":"Today on Beyond the Bleeds, Heather and I welcome Amy Wilson, clinical social worker at the Center for Bleeding and Clotting Disorders at M Health Fairvie…","key_points":[],"chapters":[],"topics":[],"duration_seconds":2402,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/beyond-the-bleeds-7074228/episodes/improving-care-through-trauma-informed-practices-in-hemophilia-clinics-with-amy-wilson/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228/improving-care-through-trauma-informed-practices-in-hemophilia-clinics-with-amy-wilson.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}