{"podcast":{"title":"Beyond the Bleeds","slug":"beyond-the-bleeds-7074228","podcast_index_feed_id":7074228,"rss_url":"https://hemophiliaoutreach.org/feed/podcast/","website_url":"https://hemophiliaoutreach.org/","image_url":"https://hemophiliaoutreach.org/wp-content/uploads/2025/04/Album-Art.jpg","author":"Hemophilia Outreach Center","episode_count":50,"summary":"Beyond the Bleeds is your go-to podcast for navigating life with bleeding disorders like hemophilia, von Willebrand disease, and more. Each episode brings expert insights, inspiring personal stories, and practical advice for managing these conditions. Whether you’re living with a bleeding disorder or supporting someone who is, this podcast offers support, education, and a sense of community. Join us as we explore the challenges, triumphs, and innovations in care. For more resources, visit hemophiliaoutreach.org.","last_synced_at":"2026-07-20T10:20:06.864084+00:00","page_url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228"},"episode":{"title":"Everyday Challenges of Living with HSD and EDS with Andrea Buxton and Brightyn Handrich","slug":"everyday-challenges-of-living-with-hsd-and-eds-with-andrea-buxton-and-brightyn-handrich","published_at":"2026-03-30T05:00:00+00:00","page_url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228/everyday-challenges-of-living-with-hsd-and-eds-with-andrea-buxton-and-brightyn-handrich","show_page_url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228","url":"https://hemophiliaoutreach.org/living-with-hsd-eds/","audio_url":"https://media.blubrry.com/3770961/content.blubrry.com/3770961/EDS-HSH_Audio-Revised.mp3","summary":"Today on Beyond the Bleeds , we’re joined by Andrea Buxton, nurse practitioner, and Brightyn Handrich, physical therapist, to discuss hypermobility spectrum disorder (HSD) and Ehlers-Danlos syndrome (EDS) and how these conditions can intersect with bleeding symptoms. EDS and HSD are connective tissue disorders that affect the body’s collagen, which provides structure and support for joints, blood vessels, skin, and other tissues. When collagen doesn’t function properly, patients may experience joint instability, chronic pain, fatigue, and a wide range of symptoms across multiple body systems. Andrea and Brightyn explain why these disorders can sometimes lead to symptoms similar to bleeding disorders, including bruising, nosebleeds, heavy menstrual bleeding, and prolonged bleeding from injuries. Because connective tissue also supports blood vessels, increased fragility can make bleeding more likely even when traditional clotting tests appear normal. The conversation also explores why these conditions can take years to diagnose. Many patients experience symptoms across multiple systems and are often referred to several specialists before the full picture becomes clear. Through comprehensive care teams that include providers, physical therapists, dietitians, behavioral health specialists, and social workers, patients can receive coordinated support to manage symptoms and improve quality of life. “We can make sure that we’re providing the treatments that you need. There’s certain imaging things that all these patients should have. And having a comprehensive care team like we have helps them with so many of their symptoms.” — Andrea Buxton This episode of Beyond the Bleeds explores: What Ehlers-Danlos syndrome and hypermobility spectrum disorder are How connecti…","meta_description":"Today on Beyond the Bleeds , we’re joined by Andrea Buxton, nurse practitioner, and Brightyn Handrich, physical therapist, to discuss hypermobility spectr…","key_points":[],"chapters":[],"topics":[],"duration_seconds":2662,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/beyond-the-bleeds-7074228/episodes/everyday-challenges-of-living-with-hsd-and-eds-with-andrea-buxton-and-brightyn-handrich/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/beyond-the-bleeds-7074228/everyday-challenges-of-living-with-hsd-and-eds-with-andrea-buxton-and-brightyn-handrich.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}