{"podcast":{"title":"Associations Thrive","slug":"associations-thrive-5756942","podcast_index_feed_id":5756942,"rss_url":"https://feeds.captivate.fm/associations-thrive/","website_url":"https://www.matrixgroup.net/associations-thrive-podcast/","image_url":"https://artwork.captivate.fm/d7b8bee9-a4ea-4d53-9590-cb5dd05e76cf/AEgteUQAHsjBcEekDEHb6bJU.jpg","author":"Joanna Pineda","episode_count":182,"summary":"This is Associations Thrive, the podcast celebrating successful associations and their leaders. Listen in as top association executives tell all, revealing the creative and innovative ways they’re increasing their bottom line, serving their members, and reimaging their organizations. The Associations Thrive podcast is hosted by Joanna Pineda, CEO & Chief Troublemaker at Matrix Group International. Joanna’s personal mission and the mission of Matrix Group is to help associations and nonprofits increase membership, generate revenue and thrive in the digital space. We believe that every association has a unique mission and unique story in how they’re serving their members, impacting their industry, and ultimately changing the world. Guests include top trade association, professional society, and non profit executives. We’re here to help amplify their stories so all associations can learn and thrive, together.","last_synced_at":null,"page_url":"https://stenobird.com/podcast/associations-thrive-5756942"},"episode":{"title":"177. Pamela Silberman, Co-founder, Board Member, and Treasurer of STANA, on Smell and Taste Disorders, Patient Advocacy, and Public Health Awareness","slug":"177-pamela-silberman-co-founder-board-member-and-treasurer-of-stana-on-smell-and-taste-disorders-patient-advocacy-and-public-health-awareness","published_at":"2026-04-23T10:00:00+00:00","page_url":"https://stenobird.com/podcast/associations-thrive-5756942/177-pamela-silberman-co-founder-board-member-and-treasurer-of-stana-on-smell-and-taste-disorders-patient-advocacy-and-public-health-awareness","show_page_url":"https://stenobird.com/podcast/associations-thrive-5756942","url":"https://www.matrixgroup.net/associations-thrive-podcast/","audio_url":"https://episodes.captivate.fm/episode/5c1d0fca-9fc2-4b04-a6cf-96692385fe69.mp3","summary":"Did you know that a loss of smell or taste can be an early indicator of Parkinson's, Alzheimer’s and other dementias? And in an environment where smell and taste disorders are underdiagnosed, underfunded, and often dismissed, how can an association step in to educate patients, influence research, and push for better care? In this episode of Associations Thrive, host Joanna Pineda interviews Pamela Silberman, Co-Founder, Board Member, and Treasurer of the Smell and Taste Association of North America (STANA). Pamela discusses: How STANA is the first patient organization in the United States, Canada, and Mexico focused on people living with smell and taste dysfunction. The many causes of smell and taste disorders, including congenital conditions, infections, allergies, traumatic brain injuries, sinus issues, aging, and COVID-19. How millions of people are affected by smell and taste dysfunction. Pamela’s personal journey after permanently losing her sense of smell following a sinus infection, and how that experience led her to help found STANA. Why STANA advocates for routine and universal smell and taste testing, both to improve diagnosis and to identify links to other conditions such as Parkinson’s, Alzheimer’s, and other dementias. How smell and taste dysfunction can affect mental health, nutrition, safety, social confidence, and overall quality of life. How STANA supports patients through education, virtual community, programming, and practical conversations about cooking, nutrition, texture, and adapting to flavor loss. How STANA is pushing for more patient-centered research by training patients to serve as research partners, not just research subjects. References: STANA Website","meta_description":"Did you know that a loss of smell or taste can be an early indicator of Parkinson's, Alzheimer’s and other dementias? And in an environment where smell an…","key_points":[],"chapters":[],"topics":[],"duration_seconds":1735,"processing_state":"not_requested","actions":[{"name":"request_transcript","method":"POST","url":"https://stenobird.com/v1/public/podcasts/associations-thrive-5756942/episodes/177-pamela-silberman-co-founder-board-member-and-treasurer-of-stana-on-smell-and-taste-disorders-patient-advocacy-and-public-health-awareness/transcription-requests","description":"Idempotently request low-priority transcript generation for this episode."},{"name":"read_markdown","method":"GET","url":"https://stenobird.com/podcast/associations-thrive-5756942/177-pamela-silberman-co-founder-board-member-and-treasurer-of-stana-on-smell-and-taste-disorders-patient-advocacy-and-public-health-awareness.md","description":"Read the agent-friendly Markdown representation of this episode resource."}]}}