# Ep. 7  A Caregivers Guide

Page: https://stenobird.com/podcast/this-is-parkinson-s-7724134/ep-7-a-caregivers-guide
Text version: https://stenobird.com/podcast/this-is-parkinson-s-7724134/ep-7-a-caregivers-guide.md
Podcast: [This is Parkinson's](https://stenobird.com/podcast/this-is-parkinson-s-7724134)
Published: 2026-04-22T15:09:00+00:00
Episode link: https://traffic.megaphone.fm/CTCPO8757211390.mp3
Audio file: https://traffic.megaphone.fm/CTCPO8757211390.mp3
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JSON: https://stenobird.com/v1/public/podcasts/this-is-parkinson-s-7724134/episodes/ep-7-a-caregivers-guide
Duration seconds: 1955

## Resource

How do you manage a complex neurodegenerative disease from 2,000 miles away? In this episode of This is Parkinson's, Lisa Volenec sits down with Angie Allison, a daughter and advocate who turned her father Ron’s 15-year battle with Parkinson’s into a masterclass in caregiving. Angie pulls back the curtain on the "Parkinson’s Iceberg," discussing the non-motor symptoms that are often more challenging than the physical tremors—including apathy, depression, and hallucinations. Whether you are a care partner, a family member, or a patient, Angie’s "meet them in the moment" philosophy offers a beautiful, practical approach to maintaining dignity and quality of life. Key Takeaways: The "Unified Force": How to split responsibilities among siblings. Portal Advocacy: Why being the "squeaky wheel" with medical teams saves lives. The Emotional Shift: Learning to not take the "disease talking" personally. Environmental Factors: A look at why the Midwest is considered a "cluster" for PD. ━━━━━━ ꕤ Support the mission of This is Parkinson’s Donate here: https://bit.ly/thisisparkinsonsdonate ━━━━━━ ꕤ Follow us: Instagram: https://www.instagram.com/thisisparkinsonsofficial Facebook: https://www.facebook.com/thisisparkinsons ━━━━━━ ꕤ About This is Parkinson’s: This is Parkinson’s is a nonprofit storytelling platform dedicated to sharing honest conversations about life with Parkinson’s disease. Through interviews with patients, caregivers, advocates, and experts, TIP aims to educate, reduce stigma, and build a community around the realities of living with Parkinson’s. Learn more: https://www.thisisparkinsons.org Contact: info@thisisparkinsons.org ━━━━━━ ꕤ 🔔 🩵 ⟢ Thank you for watching and supporting TIP. Your support helps amplify the voices of the Parkinson’s community and brings greater…

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## Transcript

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