# Ep. 1 - I Have Parkinson’s. Now What?

Page: https://stenobird.com/podcast/this-is-parkinson-s-7724134/ep-1-i-have-parkinson-s-now-what
Text version: https://stenobird.com/podcast/this-is-parkinson-s-7724134/ep-1-i-have-parkinson-s-now-what.md
Podcast: [This is Parkinson's](https://stenobird.com/podcast/this-is-parkinson-s-7724134)
Published: 2026-03-08T05:13:00+00:00
Episode link: https://traffic.megaphone.fm/CTCPO6638999950.mp3?updated=1772947216
Audio file: https://traffic.megaphone.fm/CTCPO6638999950.mp3?updated=1772947216
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JSON: https://stenobird.com/v1/public/podcasts/this-is-parkinson-s-7724134/episodes/ep-1-i-have-parkinson-s-now-what
Duration seconds: 2806

## Resource

Parkinson’s doesn’t begin with tremors. It begins with fear, uncertainty, and the quiet decision of whether to tell anyone at all. In this premiere episode of This is Parkinson’s (TIP), founder Lisa Volenec sits down with Bob Sullivan, friend and co-founder of TIP, and her sister, Kris Volenec, for an honest conversation about her diagnosis, the grief that followed, and the courage it took to share her story publicly. Together, they discuss what it was like for Lisa to hide her diagnosis, grieving career changes, leaning into exercise and community support, and ultimately launching a nonprofit dedicated to elevating the real voices of those living with parkinson’s disease. This is where the journey begins. ━━━━━━ ꕤ Support the Mission: 🙏 Donate to help elevate voices and raise awareness: bit.ly/thisisparkinsonsdonate ━━━━━━ ꕤ Follow us: ➤ Instagram: www.instagram.com/thisisparkinsonsofficial ➤ Facebook: www.facebook.com/thisisparkinsonsofficial ━━━━━━ ꕤ About This is Parkinson’s: Our mission is to break stigma and build empathy through authentic storytelling that reveals the humanity of life with Parkinson’s. Founded and led by a journalist living with Parkinson’s themself, TIP brings real experiences to light to build connection, understanding, and a community of support. 🌐 Find out more: thisisparkinsons.org 📧 Contact us: thisisparkinsons.org/contact/ ━━━━━━ ꕤ 🔔 🩵 ⟢ Thank you for watching and supporting TIP. Be sure to like, subscribe, and share this episode — it helps us continue to elevate voices and build a stronger, more informed community. Learn more about your ad choices. Visit megaphone.fm/adchoices

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## Transcript

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