# Rare Isn’t Rare with Giusiana Prosser

Page: https://stenobird.com/podcast/the-wheelchair-roundtable-atp-end-user-perspective-7420120/rare-isn-t-rare-with-giusiana-prosser
Text version: https://stenobird.com/podcast/the-wheelchair-roundtable-atp-end-user-perspective-7420120/rare-isn-t-rare-with-giusiana-prosser.md
Podcast: [The Wheelchair Roundtable  ATP-End User Perspective](https://stenobird.com/podcast/the-wheelchair-roundtable-atp-end-user-perspective-7420120)
Published: 2026-01-07T04:38:35+00:00
Episode link: https://rss.com/podcasts/podcast-pod31/2435993
Audio file: https://content.rss.com/episodes/339077/2435993/podcast-pod31/2026_01_07_04_37_26_e4992870-1cfd-41cb-a3cf-17803919e4e6.mp3
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JSON: https://stenobird.com/v1/public/podcasts/the-wheelchair-roundtable-atp-end-user-perspective-7420120/episodes/rare-isn-t-rare-with-giusiana-prosser
Duration seconds: 4018

## Resource

At just 12 years old, Giusiana Prosser began experiencing medical symptoms that would change her life — symptoms that were dismissed, minimized, and misunderstood for years. After being told it was “all in her head,” Giusiana never stopped advocating for herself. At 19, she was diagnosed with Ehlers-Danlos Syndrome , and at 21 with Andersen–Tawil Syndrome , finally giving a name to what her body had known all along. Today, she also lives with a tethered spinal cord. Now a artist , rare disease advocate , motivational speaker , and Ms. Wheelchair Washington USA , Giusiana uses her platform to challenge misconceptions around disability and share a powerful truth: “Rare isn’t rare.” In this episode, Giusiana opens up about growing up without answers, the emotional toll of not being believed, and how self-advocacy became her lifeline. She also shares how art, purpose, and resilience continue to shape her journey — including her upcoming path to Ms. Wheelchair USA 2026 and her artwork being featured at the Kennedy Center . This is a story about finding your voice, demanding to be heard, and choosing to live fully — even when the world doesn’t make it easy. 🎧 Press play and meet Giusiana Prosser .

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## Transcript

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