# 068 - Growing Up With Dementia | A Young Carer's Story with Cici Willoughby

Page: https://stenobird.com/podcast/the-dementia-dialogues-7089104/068-growing-up-with-dementia-a-young-carer-s-story-with-cici-willoughby
Text version: https://stenobird.com/podcast/the-dementia-dialogues-7089104/068-growing-up-with-dementia-a-young-carer-s-story-with-cici-willoughby.md
Podcast: [The Dementia Dialogues](https://stenobird.com/podcast/the-dementia-dialogues-7089104)
Published: 2026-03-22T03:00:00+00:00
Episode link: https://6a321076-7705-4888-9b4f-af863f963ca6.libsyn.com/068-growing-up-with-dementia-a-young-carers-story-with-cici-willoughby
Audio file: https://traffic.libsyn.com/secure/6a321076-7705-4888-9b4f-af863f963ca6/DD_Cici_Willoughby_Edited.mp3?dest-id=4784362
Processing state: not_requested
JSON: https://stenobird.com/v1/public/podcasts/the-dementia-dialogues-7089104/episodes/068-growing-up-with-dementia-a-young-carer-s-story-with-cici-willoughby
Duration seconds: 2923

## Resource

What is it really like growing up with a parent living with dementia? Cici Willoughby was just eleven when her dad was diagnosed with posterior cortical atrophy, a rare form of dementia that affects visual processing. In this powerful conversation, she shares her experience as a young carer, explains PCA, and discusses why she created Seeing Dementia Differently to support others navigating the same journey. 👉Links: www.seeingdementiadifferently.com Do I see What You See? YouTube video link: https://youtu.be/jekW8Z93LMw?si=g8DDTm5ECbaXgJ91

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## Transcript

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