# Bonus: The Path with Becky Quick: Dan and Nick Gilbert’s Rare Legacy 5/20/

Page: https://stenobird.com/podcast/squawk-pod-254103/bonus-the-path-with-becky-quick-dan-and-nick-gilbert-s-rare-legacy-5-20
Text version: https://stenobird.com/podcast/squawk-pod-254103/bonus-the-path-with-becky-quick-dan-and-nick-gilbert-s-rare-legacy-5-20.md
Podcast: [Squawk Pod](https://stenobird.com/podcast/squawk-pod-254103)
Published: 2026-05-21T10:00:00+00:00
Episode link: https://www.cnbc.com
Audio file: https://dts.podtrac.com/redirect.mp3/cnbc.simplecastaudio.com/2abef7ca-625f-4c74-9157-968d7da67c81/episodes/02d47fb1-9b9b-4327-8b39-a00041a08548/audio/128/default.mp3?aid=rss_feed&awCollectionId=2abef7ca-625f-4c74-9157-968d7da67c81&awEpisodeId=02d47fb1-9b9b-4327-8b39-a00041a08548&feed=VHAcgaw_
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Duration seconds: 1900

## Resource

Dan Gilbert wears many hats: NBA owner, entrepreneur, Detroit booster and Dad. While building Rocket Companies – the $30 billion mortgage giant – and investing billions in the Motor City’s 21st century development, he was a rare disease parent. Gilbert’s oldest child, Nick, died in 2023 following a lifelong battle with neurofibromatosis, a genetic disease that causes tumors to grow on nerve pathways anywhere in the body. The most common type, NF1, affects approximately 1 in 2,500 births. Half of those patients develop learning and physical challenges. Nick had a following among basketball fans. He represented the Cleveland Cavaliers at multiple NBA draft lotteries and proved something of a good luck charm for the team and the city. Since his death, the Gilbert family have pledged millions to fund research initiatives in the hopes of finding a cure for NF. Read more about the Gilbert Family Foundation’s work here: https://gilbertfamilyfoundation.org/ Follow the high-impact research to develop treatments for neurofibromatosis type 1: https://www.nfxdetroit.org/ If you are a parent or caregiver seeking NF information: https://www.ctf.org/ Join us in advancing awareness and understanding of rare diseases. Visit CNBC.com/Cures to access clips, resources, or to sign up for our weekly newsletter. Learn more about rare disease – and what to do in a diagnosis – at the National Organization for Rare Disorders: https://rarediseases.org/ Follow Becky Quick on X: @BeckyQuick Please share your thoughts or rare disease story in the comments, and join us on The Path.

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