# Chris Barry

Page: https://stenobird.com/podcast/sarcoma-stories-7071726/chris-barry
Text version: https://stenobird.com/podcast/sarcoma-stories-7071726/chris-barry.md
Podcast: [Sarcoma Stories](https://stenobird.com/podcast/sarcoma-stories-7071726)
Published: 2025-10-29T15:03:14+00:00
Episode link: https://rss.com/podcasts/sfasarcomastories/2297130
Audio file: https://content.rss.com/episodes/295596/2297130/sfasarcomastories/2025_10_29_13_19_27_9d7c85ed-8803-4531-a0ae-f3aac06e61fc.mp3
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JSON: https://stenobird.com/v1/public/podcasts/sarcoma-stories-7071726/episodes/chris-barry
Duration seconds: 3072

## Resource

On this episode, we sit down with Chris Barry, a rare disease patient and desmoid tumor survivor, dad, and civil engineer living in the San Francisco Bay Area. Diagnosed with familial adenomatous polyposis (FAP) as a teenager and later with a large desmoid tumor, Chris has faced immense medical challenges — including chemotherapy, major surgeries, and an intestinal transplant — yet continues to turn adversity into advocacy. Through this conversation and his personal reflections, this episode shines a light on the realities of living with a desmoid tumor and FAP, a diagnosis often described as “benign,” or “not that severe” - a phrase that can be deeply misunderstood. Join Chris as he shines a light on what “benign” can actually mean for a desmoid tumor patient, where his journey took him, and how he became involved in the sarcoma community to help advocates for others who find themselves in a similar position. Links: Subtype Page Sarcoma Patient Pathways Survey Discussion Guide Sarcoma Stories FB Group Connect with Chris: E-mail: cbarry04@gmail.com Instagram @barry.dude

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## Transcript

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