# Heroes for Hallie Grace: Turning Grief into Action

Page: https://stenobird.com/podcast/pedra-pearls-1565679/heroes-for-hallie-grace-turning-grief-into-action
Text version: https://stenobird.com/podcast/pedra-pearls-1565679/heroes-for-hallie-grace-turning-grief-into-action.md
Podcast: [PeDRA Pearls](https://stenobird.com/podcast/pedra-pearls-1565679)
Published: 2026-05-11T16:30:00+00:00
Episode link: https://pedra-podcasts.captivate.fm
Audio file: https://episodes.captivate.fm/episode/e534544c-a415-42a7-88b9-49bc12bc6162.mp3
Processing state: not_requested
JSON: https://stenobird.com/v1/public/podcasts/pedra-pearls-1565679/episodes/heroes-for-hallie-grace-turning-grief-into-action
Duration seconds: 2587

## Resource

In this episode, host Jenn Dawson speaks with Anne Davis, Pys.D., clinical psychologist, grief and trauma specialist, and mother of Hallie Grace Davis, who lived with junctional epidermolysis bullosa (EB). Anne shares Hallie’s story and how her family created Heroes for Hallie Grace to support EB families through memorial and welcome bundles, practical assistance via the Wings of Care Initiative, community events like the Butterfly Ball, and research funding. This conversation offers a clear message for researchers and clinicians alike: center quality of life, listen to patients' and caregivers' experiences, and work together to accelerate progress. Please click here to learn more about Heroes for Hallie Grace.

## Actions

- request_transcript: `POST https://stenobird.com/v1/public/podcasts/pedra-pearls-1565679/episodes/heroes-for-hallie-grace-turning-grief-into-action/transcription-requests` — Idempotently request low-priority transcript generation for this episode.
- read_markdown: `GET https://stenobird.com/podcast/pedra-pearls-1565679/heroes-for-hallie-grace-turning-grief-into-action.md` — Read the agent-friendly Markdown representation of this episode resource.

A page view does not enqueue transcription. Agents should invoke `request_transcript` explicitly when they need this episode processed.

## Transcript

Full transcripts are not published on public pages unless there is a clear rights basis.