# On Rare Innovators: Nasha Fitter is Redefining the Rare Disease Playbook – “Who says we can’t do this?”

Page: https://stenobird.com/podcast/on-rare-5037493/on-rare-innovators-nasha-fitter-is-redefining-the-rare-disease-playbook-who-says-we-can-t-do-this
Text version: https://stenobird.com/podcast/on-rare-5037493/on-rare-innovators-nasha-fitter-is-redefining-the-rare-disease-playbook-who-says-we-can-t-do-this.md
Podcast: [On Rare](https://stenobird.com/podcast/on-rare-5037493)
Published: 2025-12-10T19:20:10+00:00
Episode link: https://onrarebridgebio.podbean.com/e/on-rare-innovators-nasha-fitter-is-redefining-the-rare-disease-playbook-%e2%80%93-who-says-we-can-t-do-this/
Audio file: https://mcdn.podbean.com/mf/web/vj9ueaxn9v5g289y/On_Rare_Innovators_-_Nasha_final_56mmfu.mp3
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JSON: https://stenobird.com/v1/public/podcasts/on-rare-5037493/episodes/on-rare-innovators-nasha-fitter-is-redefining-the-rare-disease-playbook-who-says-we-can-t-do-this
Duration seconds: 2621

## Resource

In this episode of On Rare Innovators, Mandy Rohrig, Senior Director of Patient Advocacy at BridgeBio, and David Rintell, Head of Patient Advocacy at BridgeBio, talk with Nasha Fitter, a parent, entrepreneur, and rare disease leader whose determination was reshaped the day her daughter Amara was diagnosed with FOXG1 syndrome. Drawing on a career defined by bold pivots and purpose-driven problem solving, Nasha is challenging long-held assumptions about what small, rare disease communities can achieve. From building the FOXG1 Research Foundation to co-founding Citizen Health, she has pushed for new models of data, drug development, and patient empowerment. Nasha’s story is a reminder that innovation often begins with a single question: “Who says we can’t do this?”

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## Transcript

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