# #39 ME/CFS & EDS bedbound for 8 years - Learning to Live Again with Lizzie and Amy Mooney

Page: https://stenobird.com/podcast/make-visible-chronic-illness-explored-7015207/39-me-cfs-eds-bedbound-for-8-years-learning-to-live-again-with-lizzie-and-amy-mooney
Text version: https://stenobird.com/podcast/make-visible-chronic-illness-explored-7015207/39-me-cfs-eds-bedbound-for-8-years-learning-to-live-again-with-lizzie-and-amy-mooney.md
Podcast: [Make Visible: ME/CFS, Long Covid, POTS, EDS, Fibro & MCAS Explored](https://stenobird.com/podcast/make-visible-chronic-illness-explored-7015207)
Published: 2026-07-24T17:01:20+00:00
Episode link: https://madevisible.podbean.com/e/39-mecfs-eds-bedbound-for-8-years-learning-to-live-again-with-lizzie-and-amy-mooney/
Audio file: https://mcdn.podbean.com/mf/web/qz2mpmmrbindhww9/Visible_S1_Ep39_Lizzie_Mooney.mp3
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JSON: https://stenobird.com/v1/public/podcasts/make-visible-chronic-illness-explored-7015207/episodes/39-me-cfs-eds-bedbound-for-8-years-learning-to-live-again-with-lizzie-and-amy-mooney
Duration seconds: 3153

## Resource

ME/CFS and EDS left Lizzie Mooney chronically sick at just nine years old. By 11 she was bedbound, spending the next eight years in bed, unable to sit upright, and dependent on her mum, Amy Mooney, for almost everything. Now 21, Lizzie is slowly reemerging into the world she left behind - relearning to walk, exploring her local area, and volunteering her time and skills. Amy, an occupational therapist who became Lizzie’s full-time carer, has since become a respected leader in the complex chronic illness space. Together they discuss: - Growing up with severe ME/CFS and EDS - Eight years bedbound, including four years completely flat - Losing childhood, education and independence to illness - How online friendships became a lifeline - Relearning the outside world after years in bed - Why contentment became more important than hope Amy Mooney OT website: https://www.ot4me.com/about Share feedback on Make Visible: https://forms.gle/sE3Ed1zNMWEBrcSK9 Make Visible: https://www.makevisible.com/blog/built-with-you-the-early-access-hub Instagram: https://www.instagram.com/visible.health/?hl=en-gb Email: podfeedback@makevisible.com

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