# Doctors Missed His Son's Disease for 20 Years | Ep. 400 with Chuck Knueve

Page: https://stenobird.com/podcast/founder-s-story-648906/doctors-missed-his-son-s-disease-for-20-years-ep-400-with-chuck-knueve
Text version: https://stenobird.com/podcast/founder-s-story-648906/doctors-missed-his-son-s-disease-for-20-years-ep-400-with-chuck-knueve.md
Podcast: [Founder's Story](https://stenobird.com/podcast/founder-s-story-648906)
Published: 2026-05-20T12:28:53+00:00
Episode link: https://bleav.com/shows/founders-story/
Audio file: https://clrtpod.com/m/pscrb.fm/rss/p/mgln.ai/e/1184/afp-969439-injected.calisto.simplecastaudio.com/a7765f3f-02e4-4ded-bca1-01a20b7f82a5/episodes/ecd26318-fd1e-41b8-93fc-f259acfa07d1/audio/128/default.mp3?aid=rss_feed&awCollectionId=a7765f3f-02e4-4ded-bca1-01a20b7f82a5&awEpisodeId=ecd26318-fd1e-41b8-93fc-f259acfa07d1&feed=NVPdHs07
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JSON: https://stenobird.com/v1/public/podcasts/founder-s-story-648906/episodes/doctors-missed-his-son-s-disease-for-20-years-ep-400-with-chuck-knueve
Duration seconds: 1400

## Resource

Daniel Robbins talks with retired pharmacist turned author Chuck Knueve about the long, brutal road to diagnosing his son with Cushing’s disease and why he wrote Surviving Cushing’s Disease: A Young Man’s Journey at 73. Chuck explains how the condition mimics common illnesses, why testing happens too late, and how a 20-year delay can leave permanent damage even after treatment. He shares the practical red flags, why families must advocate hard, and the moment he chose to tell the story so others can get an earlier diagnosis.

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## Transcript

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