# Why People Stay (Or Don't)/ Rethinking Participation in Modern Trials Page: https://stenobird.com/podcast/decentralized-the-decentralized-trials-research-podcast-6281264/why-people-stay-or-don-t-rethinking-participation-in-modern-trials Text version: https://stenobird.com/podcast/decentralized-the-decentralized-trials-research-podcast-6281264/why-people-stay-or-don-t-rethinking-participation-in-modern-trials.md Podcast: [Decentralized: The Decentralized Trials & Research Podcast](https://stenobird.com/podcast/decentralized-the-decentralized-trials-research-podcast-6281264) Published: 2025-11-17T13:00:00+00:00 Episode link: https://www.dtra.org Audio file: https://dts.podtrac.com/redirect.mp3/episodes.captivate.fm/episode/1fb79f54-2bbc-4750-b875-ec4a745f53d7.mp3 Processing state: not_requested JSON: https://stenobird.com/v1/public/podcasts/decentralized-the-decentralized-trials-research-podcast-6281264/episodes/why-people-stay-or-don-t-rethinking-participation-in-modern-trials Duration seconds: 3413 ## Resource 2025-11-14 - Hosts Amir Kalali and Jane Myles were joined by Alex Charge ( ISPEP ) and Stacey Davidson ( Cuttsy+Cuttsy ) on what today’s clinical trial participants experience from start to finish. Drawing on new research conducted by their organizations, the conversation unpacks how patients discover trials, why they join, and what drives both positive experiences and early dropout. Key themes include the importance of strong site support, clearer communication, caregiver involvement, and the operational challenges that trial sites face. The group also explores broader issues in patient engagement—from protocol design and long-term communication gaps to the role AI could play in improving support and retention. The Participation Equation: a webinar from Cuttsy+Cuttsy and ISPEP Link to sign up for the webinar on 11/19 at 9:00 AM ET The participation equation: Understanding what drives participant engagement in clinical trials Link to access the report here You can join TGIF-DTRA Sessions live on LinkedIn Live on Friday's at 12:00 PM ET by checking out our LinkedIn. Follow the Decentralized Trials & Research Alliance (DTRA) on LinkedIn and X . Learn more about Membership options and our work at www.dtra.org . ## Actions - request_transcript: `POST https://stenobird.com/v1/public/podcasts/decentralized-the-decentralized-trials-research-podcast-6281264/episodes/why-people-stay-or-don-t-rethinking-participation-in-modern-trials/transcription-requests` — Idempotently request low-priority transcript generation for this episode. - read_markdown: `GET https://stenobird.com/podcast/decentralized-the-decentralized-trials-research-podcast-6281264/why-people-stay-or-don-t-rethinking-participation-in-modern-trials.md` — Read the agent-friendly Markdown representation of this episode resource. A page view does not enqueue transcription. Agents should invoke `request_transcript` explicitly when they need this episode processed. ## Transcript Full transcripts are not published on public pages unless there is a clear rights basis.