# Colitis diagnosis, surgery and survival: Clare’s IBD turning point

Page: https://stenobird.com/podcast/colitis-unfiltered-7485565/colitis-diagnosis-surgery-and-survival-clare-s-ibd-turning-point
Text version: https://stenobird.com/podcast/colitis-unfiltered-7485565/colitis-diagnosis-surgery-and-survival-clare-s-ibd-turning-point.md
Podcast: [Colitis Unfiltered](https://stenobird.com/podcast/colitis-unfiltered-7485565)
Published: 2026-04-08T13:29:47+00:00
Episode link: https://rss.com/podcasts/talkingsht/2658603
Audio file: https://content.rss.com/episodes/346910/2658603/talkingsht/2026_03_24_16_02_09_48fddfcb-8297-4ee7-82c4-c4c1bcc7033b.mp3
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JSON: https://stenobird.com/v1/public/podcasts/colitis-unfiltered-7485565/episodes/colitis-diagnosis-surgery-and-survival-clare-s-ibd-turning-point
Duration seconds: 2146

## Resource

In episode 16 of the Colitis Unfiltered podcast, I speak with Clare, who was diagnosed with indeterminate colitis after a sudden and severe onset of symptoms that landed her in the hospital. With no clear diagnosis and little information available at the time, she was thrown into a confusing and frightening start to life with inflammatory bowel disease. Diagnosed as a teenager and navigating years of flares, steroids, and uncertainty, Clare shares what it was like to grow up with IBD while trying to live a normal life. After more than a decade of remission, her condition came back aggressively, leading to emergency surgery and a life-changing ostomy. She opens up about fear, complications, mental health struggles, and the reality of starting over after major surgery. Today, Clare lives with a stoma and ongoing complications, but also with perspective, resilience, and a renewed sense of purpose. She speaks honestly about body image, advocacy, and why surgery should not always be seen as a last resort. Her story is raw, complex, and a powerful reminder that life with IBD doesn’t end, it changes. For more stories from the bathroom floor, subscribe to the podcast and visit colitisunfiltered.com

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## Transcript

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