# Living Life Beyond Hemophilia B: A Personal Journey with Chris Woller Page: https://stenobird.com/podcast/beyond-the-bleeds-7074228/living-life-beyond-hemophilia-b-a-personal-journey-with-chris-woller Text version: https://stenobird.com/podcast/beyond-the-bleeds-7074228/living-life-beyond-hemophilia-b-a-personal-journey-with-chris-woller.md Podcast: [Beyond the Bleeds](https://stenobird.com/podcast/beyond-the-bleeds-7074228) Published: 2026-07-06T05:00:00+00:00 Episode link: https://hemophiliaoutreach.org/living-life-beyond-hemophilia-b/ Audio file: https://media.blubrry.com/3770961/content.blubrry.com/3770961/Chris_Woller_His_Story_of_Hemophilia_B_Audio_v2.mp3 Processing state: not_requested JSON: https://stenobird.com/v1/public/podcasts/beyond-the-bleeds-7074228/episodes/living-life-beyond-hemophilia-b-a-personal-journey-with-chris-woller Duration seconds: 1765 ## Resource Today on Beyond the Bleeds , Heather and John are joined by HOC’s IT Coordinator, Chris Woller, for a personal conversation about growing up with severe hemophilia B and how treatment has changed over the course of his lifetime. Chris shares his experiences navigating childhood with a bleeding disorder, the challenges of early treatment, and how advances in care have allowed him to live a full and active life. The conversation begins with Chris’s childhood, when treatment options were limited and spontaneous bleeds often meant long plasma infusions, wheelchairs, and missing out on activities many other children took for granted. He reflects on the emotional impact of growing up with hemophilia, finding confidence through music, and learning to navigate friendships while living with a chronic condition. Chris also shares the story of a life-threatening brain bleed that changed his perspective and ultimately strengthened his connection to the Hemophilia Outreach Center. He discusses how receiving care through a Hemophilia Treatment Center helped guide his treatment and why comprehensive care continues to play such an important role for people living with bleeding disorders. Finally, the group reflects on how dramatically hemophilia treatment has evolved. From fresh frozen plasma and on-demand treatment to prophylaxis and today’s extended half-life therapies, Chris offers a unique perspective as someone who has experienced these advancements firsthand. He closes with encouragement for parents and young people living with bleeding disorders, reminding listeners that while hemophilia is part of who you are, it doesn’t have to define your future. “Your bleeding disorder is a part of who you are… but it doesn’t have to determine who you are.” — C… ## Actions - request_transcript: `POST https://stenobird.com/v1/public/podcasts/beyond-the-bleeds-7074228/episodes/living-life-beyond-hemophilia-b-a-personal-journey-with-chris-woller/transcription-requests` — Idempotently request low-priority transcript generation for this episode. - read_markdown: `GET https://stenobird.com/podcast/beyond-the-bleeds-7074228/living-life-beyond-hemophilia-b-a-personal-journey-with-chris-woller.md` — Read the agent-friendly Markdown representation of this episode resource. A page view does not enqueue transcription. Agents should invoke `request_transcript` explicitly when they need this episode processed. ## Transcript Full transcripts are not published on public pages unless there is a clear rights basis.