# How are families and hospitals bringing the Generation Study to life?

Page: https://stenobird.com/podcast/behind-the-genes-3509739/how-are-families-and-hospitals-bringing-the-generation-study-to-life
Text version: https://stenobird.com/podcast/behind-the-genes-3509739/how-are-families-and-hospitals-bringing-the-generation-study-to-life.md
Podcast: [Behind the Genes](https://stenobird.com/podcast/behind-the-genes-3509739)
Published: 2025-09-24T07:00:00+00:00
Episode link: https://genomicsengland.podbean.com/e/how-are-families-and-hospitals-bringing-the-generation-study-to-life/
Audio file: https://mcdn.podbean.com/mf/web/jb62fk9ecjhsy3jy/Behind_the_Genes_020_How_are_families_and_hospitals_bringing_the_Generation_Study_to_lifealwvm.mp3
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Duration seconds: 2432

## Resource

In this episode, we step inside the NHS to explore how the Generation Study is brought to life - from posters in waiting rooms to midwife training. We follow the journey of parents joining the study at the very start of their baby’s life, and hear from those making it happen on the ground. Our guests reflect on the teamwork between families and hospitals, the importance of informed consent, and the powerful insights this study could unlock for the future of care and research. Our host Jenna Cusworth-Bolger, Senior Service Designer at Genomics England, is joined by: Tracie Miles, Associate Director of Nursing and Midwifery at the South West Genomic Medicine Service Alliance, and Co-Investigator for the Generation Study at St Michael’s Hospital in Bristol Rachel Peck, parent participant in the Generation Study and mum to Amber If you enjoyed today’s conversation, please like and share wherever you listen to your podcasts. For more on the Generation Study, explore: Podcast: How has design research shaped the Generation Study Podcast: What can we learn from the Generation Study Podcast: What do parents want to know about the Generation Study Blog: Genomics 101 - What is the Generation Study Generation Study official website “I think from a parent’s point of view I guess that's the hardest thing to consent for, in terms of you having to make a decision on behalf of your unborn child. But I think why we thought that was worthwhile was that could potentially benefit Amber personally herself, or if not, there's a potential it could benefit other children.” You can download the transcript, or read it below. Jenna: Hi, and welcome to Behind the Genes. Rachel: I think if whole genome sequencing can help families get answers earlier, then from a parent perspective I think anything…

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## Transcript

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