# Creating Community for Rare Disease Parents

Page: https://stenobird.com/podcast/all-access-dna-7139504/creating-community-for-rare-disease-parents
Text version: https://stenobird.com/podcast/all-access-dna-7139504/creating-community-for-rare-disease-parents.md
Podcast: [All Access DNA](https://stenobird.com/podcast/all-access-dna-7139504)
Published: 2026-01-27T09:00:00+00:00
Episode link: https://allaccessdna.podbean.com/e/rare_disease_community_podcast/
Audio file: https://mcdn.podbean.com/mf/web/5zfd8eagrnhybrmt/Episode_479vp7c.mp3
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JSON: https://stenobird.com/v1/public/podcasts/all-access-dna-7139504/episodes/creating-community-for-rare-disease-parents
Duration seconds: 3392

## Resource

Building support, navigating the emotional journey of having a medically complex child. In this conversation, Madeline Cheney discusses her journey as a parent of a child with a rare genetic condition and the creation of her podcast, The Rare Life. She emphasizes the importance of building a community for parents facing similar challenges, the emotional impact of being a carrier of a genetic condition, and the role of advocacy in medical care. Madeline shares her experiences with grief, resilience, and the need for self-care, while also outlining the future goals of her nonprofit organization to support families in the NICU and beyond. Key Takeaways: The Rare Life podcast was created to build a community for parents of children with disabilities. Navigating a rare diagnosis can be overwhelming, but support from others is vital. Advocacy is essential in medical care for children with disabilities. Building resilience is a gradual process for parents facing challenges. Madeline is the host and founder of The Rare Life, a nonprofit podcast and community for parents of people with medical complexities and disabilities. She is mom to 10 year old Wendy and 7 year old Kimball who has a rare syndrome. Her experiences navigating medical complexities with zero community inspired the creation of The Rare Life. When she isn't hanging out with her family or working, she loves soaking in a hot bath with a good book or watching an old episode of Murder She Wrote. Please subscribe to this podcast on Apple Podcasts, Spotify, YouTube or wherever you get your podcasts to stay updated on new episodes of All Access DNA. Listen to past episodes on your favorite podcast play by searching “All Access DNA” or by streaming from our website at allaccessdna.podbean.com Here are more resources rel…

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## Transcript

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